Skip to main content

Alpha-1 Antitrypsin Deficiency, Pediatric

Christine K. Lee, MD Reviewed 10/2018
 


BASICS

DESCRIPTION

  • α1-antitrypsin (AAT) deficiency is an autosomal codominant genetic disorder that causes lung, liver, and skin disease.

  • Lung disease in AAT deficiency can develop after the 3rd decade ...

DIAGNOSIS

HISTORY

  • Highly variable presentation in neonates and young children

  • Most infants develop cholestatic jaundice, hepatosplenomegaly, poor feeding, and poor weight gain.

  • Jaundice typically improve...

TREATMENT

  • There is no specific treatment for the liver disease associated with AAT deficiency.

  • Management involves supportive care to try to prevent complications of chronic liver disease.

  • Patients with...

ONGOING CARE

FOLLOW-UP RECOMMENDATIONS

Patient Monitoring

  • Annual liver and pulmonary function testing

  • Surveillance for hepatocellular carcinoma in PiZZ patients is suggested, but consensus on frequency a...

ADDITIONAL READING

  • Miranda E, Pérez J, Ekeowa UI, et al. A novel monoclonal antibody to characterize pathogenic polymers in liver disease associated with alpha1-antitrypsin deficiency. Hepatology. ...

CODES

ICD9

  • 273.4 Alpha-1-antitrypsin deficiency

ICD10

  • E88.01 Alpha-1-antitrypsin deficiency

SNOMED

  • 30188007 alpha-1-Antitrypsin deficiency (disorder)

FAQ

  • Q: Do all patients with presumed AAT require liver biopsy for diagnosis?

  • A: No. A liver biopsy is not required for diagnosis but may help be performed to support it.

  • Q: Are PAS-positive, diastase-re...

Subscribe to Access Full Content

Sign Up for a 10-Day Free Trial

Sign up for a 10-day FREE Trial now and receive full access to all content.

×