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Fragile X Syndrome, Pediatric

Chad R. Haldeman-Englert, MD and Marni J. Falk, MD Reviewed 10/2018
 


BASICS

DESCRIPTION

  • Most common cause of inherited intellectual disability (ID)

  • Caused by mutations in the FMR1 gene on chromosome Xq27.3

EPIDEMIOLOGY

  • Affects ~1 in 4,000 to 6,000 males; prevalence in fema...

DIAGNOSIS

HISTORY

  • Birth/neonatal history

    • Normal to increased birth weight

    • May have large head circumference at birth

    • Feeding problems and frequent emesis due to gastroesophageal reflux may occur but impro...

TREATMENT

GENERAL MEASURES

  • Treatment is aimed at supportive measures.

  • Per American Academy of Pediatrics (AAP) guidelines, routine evaluation for ocular, ENT, skeletal, and neurologic abnormalities. Ref...

ONGOING CARE

FOLLOW-UP RECOMMENDATIONS

Patient Monitoring

  • Regular follow-up with a behavioral and developmental pediatrician as well as a psychiatrist/psychologist is recommended for patients with behav...

ADDITIONAL READING

  • American Academy of Pediatrics. Health supervision for children with fragile X syndrome. Pediatrics.  2011;127(5):994–1006. [View Abstract on OvidInsights]

  • Ligsay A, Hagerman RJ...

CODES

ICD9

759.83 Fragile X syndrome 

ICD10

Q99.2 Fragile X chromosome 

SNOMED

613003 fragile X syndrome (disorder) 

FAQ

  • Q: Why is it called “fragile X syndrome”?

  • A: Early cytogenetic studies of male patients with ID identified a site on the X chromosome that would appear constricted when the patient’s cells were gro...

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